Pat was doing well today. His bilirubin is down, so the blue lights and the nasty eye protection he had to wear (and kept trying to push off) was removed. He still needs to be in the tent though - being in a low oxygen environment is better than having to be on yet another drug. I just hope he doesn't develop an unhealthy attachment to plastic bags.
I went through and posted a bunch of new pictures on Flickr - you can see them by clicking on these words.
At this time we still aren't sure exactly when the surgery will be. "Sometime next week" is the official line. It's nice that they aren't worried about him being OK until then, but it would be nice to know. I think we won't have anything definitive until after the surgery team decides on the week's schedule Monday morning.
Until then, we can continue to hold him outside the tent a little, and hold his hand and touch him in the tent (with the plastic sealed as best we can around our arms) the rest of the time. His skin is so soft, and he seems to appreciate the contact: we can see how his breathing seems to be more stable when we hold or touch him. Not that we wouldn't spend all day there every day just to look at such a doll, but being able to touch him is a huge benefit. I think it helps Pat too.
Wednesday, March 11, 2009
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